Aria's story

Aria’s mum, Jenny, explains the complexity of Aria’s condition and the importance of The Hamlet in their family life.
Aria's story

“At my 20 week scan I was told everything was fine, but then at 32 weeks an abnormality was found in Aria’s brain, with extra fluid detected. I was told by doctors pre-birth that she would very likely not walk or talk and told Aria would have a very poor prognosis and quality of life. Yet, I could feel her kicking inside me. Logic told me that what would be would be and that everything happens for a reason.

Aria has increased fluid on her brain which causes a raise in pressure in the brain and she has a shunt in place to reduce the fluid which reduces the pressure. The medical diagnosis is ventriculomegaly and hydrocephalus. She is registered blind and has severe epilepsy which causes her to have very complex seizures. Aria also has a form of cerebral palsy which affects her muscles and mobility, global developmental delay and sensory processing disorder. She has had many occasions at hospital since her birth with 3 operations on her brain and at the age of 8 months, a seizure which lasted at least 45 minutes causing temporary paralysis. She has to be watched at all times due to her complexities and I had never felt able to leave her until she started at The Hamlet.

I knew the charity before Aria came a long and instantly knew this was the place I wanted her to go. She started attending the pre-school for 2 days a week and I was overwhelmed with the progress she made so quickly. I have every faith in the people I leave her with – the skills, training and resources they can offer us is perfect at meeting Aria’s needs.

Aria can be so exhausting – she is constantly on the go, has poor sleep and presents me with some very challenging behaviours – biting, head butting and pulling hair. The Hamlet allows me to have a break so that I can have a little time back for me and the rest of the family. Time to shop, clean, and do the everyday things that I used to take for granted.

I am hoping that Aria will be able to attend more days at The Hamlet in the future. The charity really goes the extra mile for my family. I feel like they are there for me whenever I need them, almost like they provide a second home.  I have complete peace of mind that she is well cared for and supported by the staff who work with her. It’s such a special place, but as with many special places like this, one that relies on the good of the public to help with costs. The money that the public kindly donates will ensure that The Hamlet continues to do so the wonderful work they do for my family and many others. I thank those who choose to support them. It means so much.”

"I have complete peace of mind that she is well cared for and supported by the staff who work with her. It’s such a special place, but as with many special places like this, one that relies on the good of the public to help with costs."

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